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Genetic testing should not be performed on individuals unless they have provided informed consent.
Policymakers and the private sector should ensure that organizations effectively protect against unauthorized access to or misuse of consumers’ health and health-related information.
Health care providers should continue to be responsible for obtaining and maintaining the health records of their patients.
Policymakers and the private sector should explore opportunities to build trust in efforts to encourage health data-sharing to benefit health research that promotes the greater public good.
All consumers should have the opportunity to benefit from the vast array of data-driven insights and innovation stemming from the accumulation, combination, and analysis of large health and health-
All levels of government and the private sector should adequately fund and support antifraud and anti-abuse efforts. A balanced approach to enforcement should be taken.
Policymakers should encourage competition that enables purchasers to obtain price discounts from pharmaceutical manufacturers.
Federal and state governments should provide sufficient funding for long-term public education programs.