Policymakers should protect people from the harms of disclosure or misuse of all personally identifiable health- and health-related data.
Consumers should receive clear, understandable, and accessible information about how their health and health-related data are being collected,
Genetic testing should not be performed on individuals unless they have provided informed consent.
Healthcare providers should continue to be responsible for obtaining and maintaining the health records for their patients.
Policymakers and the private sector should explore opportunities to build trust in efforts to encourage health data-sharing to benefit health research that
All consumers should have the opportunity to benefit from the wide array of data-driven insights and innovation stemming from the accumulation, combination, and
Federal, state, and local policymakers should engage in robust, fully funded public health activities and programs.
Officials at all levels of government should help people fulfill their personal responsibility to protect their health by taking advantage of health-education op
Health care providers should strongly encourage advance care planning by all older patients, but particularly those who have been diagnosed with cognitive