Policymakers should protect people from the harms of disclosure or misuse of all personally identifiable health- and health-related data.
Consumers should receive clear, understandable, and accessible information about how their health and health-related data are being collected,
Genetic testing should not be performed on individuals unless they have provided informed consent.
Healthcare providers should continue to be responsible for obtaining and maintaining the health records for their patients.
Policymakers and the private sector should explore opportunities to build trust in efforts to encourage health data-sharing to benefit health research that
All consumers should have the opportunity to benefit from the wide array of data-driven insights and innovation stemming from the accumulation, combination, and
Federal and state governments should encourage coverage and payment of telehealth services for eligible beneficiaries to improve access and the quality of care.
Payment for telehealth services should be sufficient to incentivize telehealth use by providers and raise value for patients.
Consumers have a right to accurate, secure, and confidential health and health-related information.
Organizations should continue to be prohibited from sharing or selling personally identifiable protected health data without consumer consent.