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Federal and state governments should ensure that long-term services and supports (LTSS) programs cover services—such as respite care and adult day services—that

The federal government should amend Supplemental Security Income rules so that people living with family members do not have their benefits reduced (see also

Federal and state governments should provide tax credits, other financial assistance, or both to caregivers.

Policymakers should expand participant-directed (sometimes referred to as consumer-directed) service models in publicly funded home- and comm

The Centers for Medicare & Medicaid Services should require assessment of the needs of all family caregivers who aid beneficiaries of Medicaid HCBS programs.

The federal government should eliminate Medicaid’s bias favoring nursing facilities by mandating the provision of home- and community-based services (HCBS) for

The federal government should continue to fund and expand the Money Follows the Person program.

Congress and the states should expand funding for a wide range of HCBS through Medicaid, the Older Americans Act (OAA), the Social Services Block Grant program, and other pr

Consumers should have the right to direct their own services if they so choose and if they are able.

Individuals who self-direct their services should have the same protections regarding quality of care and access to appeal procedures as do other beneficiaries of Medicaid-f